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Parent and Carers

Introduction

This section of the local offer is dedicated to resources and information that are useful for parents and carers in navigating SEND and related topics, if you are aware of resources that would be useful to others please use the feedback button to advise us.

Hillingdon Parent Carer Forum

Hillingdon Parent Carer Forum are a group of parents and carers of children and young people with learning difficulties, disabilities or additional needs, based in the London Borough of Hillingdon.

They aim to represent the views of parents and carers in discussions with the local authority and, through this, to influence the way local services are delivered. They will inform the local authority of occasions when the experience of practice does not match current policy.

They also want to play a more active part in service design and development by ensuring that the needs and wishes of children and families are heard, and placed at the centre of these processes.

Contact details

E-mail hillingdonpcf@gmail.com

Website www.hillingdonpcf.com/

Telephone  07783 579678

Autism Partnership Board parent survey

The Autism Partnership Board for Hillingdon has been reviewing services across the local area for children and young people with autism and their families. We would welcome your feedback, which will be used as part of the review of services and to inform future planning. Your feedback is anonymous and your details will not be shared with any third parties. Please fill out the survey for each of your children with autism. The survey can be found here.

National Resources

Education, Health and Care Plan (EHCP) Journeys

A website has been launched to assess parents' and young people's satisfaction with the EHC assessment and planning process for children and young people with special educational needs (SEN).

EHCP Journeys features findings from ASK Research, which looked into families' experiences of the process. It also offers advice to providers informed by its findings. The site also has a number of handy tools. Access the website here.

Council for Disabled Children (CDC)

Parents and carers are the key individuals in managing the health of disabled children, they coordinate services, act as advocates, serve as information services on top of delivering a significant proportion of their child's healthcare.

Recognising their crucial role CDC has a number of resources and programmes that can help parents get the most out of the health services they need.

The Department of Health Funded Expert Parent Programme, has an innovative training programme for parents of disabled children. Developed with funding support from Department of Health, the Expert Parent Programme draws on current evidence of the positive impact of parent led training and empowers parents of disabled children and young people to become more confident when engaging with health services.

Information and the online materials from the workshops can be found by following the link below:

www.councilfordisabledchildren.org.uk/expertparent

Also see:

The Council for Disabled Children template letters requesting assessments and specific information. You can use these letters to make requests and chase up information relating to your child or young person.

A legal handbook

This is a link to the Disabled Children: a legal handbook by Steve Broach.

Steve Broach practices across the broad spectrum of public law, advising and representing individuals, charities, companies and public authorities. He has particular interest and expertise in the health, education and social care fields, with a focus on disability and children’s rights cases.

Steve also has a regulatory practice involving public law challenges to decisions of regulatory bodies and the police.

He is a passionate advocate of children and parents rights with regard to SEND.

Contact 

Contact, previously known as Contact a Family is a national charity for families with disabled children. They support families of disabled children across the UK, whatever their condition or disability.

Contact  provide information, advice and support and bring families together so they can support each other. They campaign to improve the circumstances of those they support, and for their right to be included and equal in society.

Contact have an excellent helpline that can advice on legal matters, benefits and many other topics that families with children or young people with SEND need to find out about. They also have many useful resources and guides.

Special Needs Jungle

Many families do not get the help they need because they do not know where to look or how to cut their way through increasingly complicated systems.

Special Needs Jungle is a website that aims to highlight resources and inspire and empower families to do this successfully by providing resources, tips, facts and examples.

Special Needs Jungle is the go to website for active parents who want to keep up to date with changes and developments that may affect children, families and young people with SEND.

Last reviewed: 06/11/2017

Useful links

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